What to Expect at Your First Visit
During your initial team visit, you will be meeting with several specialists. Our craniofacial nurse coordinator will contact you before your visit to let you know what to expect, get some initial information, and make your visit more efficient. Because you will see multiple specialists throughout the day, your first visit may take as long as three hours.
To avoid unnecessary delays or repetition, please bring the following documents to your child’s appointment:
- Medical records
- Names of all individuals who have cared for your child
- Medical reports
- X-rays
- CT scans
- MRIs
After your visit, all the specialists will meet in a care conference. This allows for the coordination of care and the development of an individualized treatment plan. A report with the team’s recommendations is drafted and sent to you and your primary care pediatrician.
While you may see some individual specialists more frequently depending on your child’s needs, most families usually return for a full team evaluation every one to two years. If you are traveling a long distance and need overnight accommodations, our program coordinator will work with our social worker to help you find options.