A higher level of NICU care

As Lily began her NICU journey, Sage and Ben stood strong by their daughter’s side. Days stretched into weeks, and weeks stretched into months, as they navigated the emotional highs and lows of NICU life.
Through it all, they drew strength and support from the NICU team, as well as their family and friends.
When Lily first arrived in the NICU, she was kept on a breathing tube, but as she showed improvement, the medical team was able to remove it. Thankfully, Lily didn't need to be intubated anymore.
That was a huge relief for us,
said Ben. She seemed stable, but they cautioned us about the first three to five days, calling it the 'honeymoon period.’ Our baby appeared strong and was making progress, even though she didn't get a steroid shot right after birth like most babies do to help with lung development.
In the first week, Lily had a feeding tube and lost weight as expected due to fluid loss. Though it was tough for Sage and Ben to see, the doctors reassured them it was normal. Lily's weight dropped to 1 pound, 4 ounces a week after birth. In the NICU, she was closely monitored by the medical team.
Lily didn't require any surgeries or face setbacks during her time in the NICU. Despite having a heart murmur due to abnormal blood flow caused by patent ductus arteriosus (PDA), her ductus arteriosus closed on its own, resolving the murmur. Additionally, Lily underwent two blood transfusions and received shots to maintain her red blood cell count.
Being in the NICU for 101 days was emotionally challenging. The family drove from their home in New Braunfels to San Antonio to see Lily every day.
NICU life was tough but the nurses and doctors made it bearable,
said Sage. They became like family to us and we couldn't have asked for a better team to care for our precious Lily.
The family had four primary nurses—Amy, Kasey, Bailey, and Brooke—who they said were absolutely amazing. They provided excellent care for our girl,
the couple emphasized. Lily's main NICU doctors were Dr. Cody Henderson, Dr. Maria Pierce, Dr. Cheryl Motta, Dr. Katherine Brandt and Dr. Sowmya Mohan. Each of them played a crucial role in Lily's care.
Even though they were in charge of making the critical decisions, they always made sure we felt like the parents and were still involved in our daughter’s care,
Sage added. And we can't forget our night nurses who we absolutely adored – Lee, Chris, and Janeen – they took such wonderful care of Lily.
A message for other families
Today, at 6 months old, the Speckman’s describe Lily as truly a miracle. She’s a happy baby who isn’t shy about expressing her needs or desires. Lily lights up with smiles, especially when music is playing, and she absolutely adores being outdoors.
Whether it’s going for walks or cozying up by the fire pit with her parents, she basks in the warmth and comfort. To Sage and Ben, Lily is simply the cutest thing ever.
As they begin their journey as a family of three, Sage and Ben offer these words of encouragement to other NICU families facing similar journeys. Take each day as it comes,
they say. Treasure every precious moment and rely on your support system. And most importantly, never lose sight of hope.
Learn more about our NICU at CHRISTUS Children’s.